Skip to main content

Girl whose rare illness helped pass medical marijuana law in Minnesota has died

The 12-year-old leaves behind an enduring legacy.

Amelia Weaver, the Hibbing girl whose plight helped bring about the legalization of medical marijuana in Minnesota, has died at the age of 12.

Weaver suffered from a rare form of epilepsy, which led her parents to play a major role in the ultimately successful campaign to pass medical marijuana laws, which became legal in Minnesota in 2015.

On her Facebook page, Fighting for Amelia, parents Josh and Angie Weaver announced their daughter's death on Thursday.

"Warrior Amelia after a lifelong battle with Scn2a passed away today," they wrote.

"We did not take one single moment with our Amelia for granted. It was the greatest privilege of our life’s to be Amelia’s parents. There are no seizures in Heaven sweet girl."

Weaver suffered from a rare and severe form of epilepsy called Dravet Syndrome, which cost her ability to speak and walk, and was eventually diagnosed at the age of 6.

Prior to taking medical marijuana, her condition would cause her to have 30-50 seizures every day.

But taking marijuana procured from one of Minnesota's medical pot providers, Leafline Labs, improved her condition considerably.

Follow Bring Me The News on Facebook.

Her seizures immediately reduced to only one every few days, she was able to take some steps with the help of her father, and she could finally travel with her family.

Her condition worsened this summer however, with her parents posting an update from the Mayo Clinic on Aug. 8 after the 12-year-old was airlifted there.

She was in the pediatric intensive care unit, with her parents noting her "battle with Scn2a has been an extremely tough lifelong fight."

Details of her funeral will be released in the coming days.

Next Up

ambulance

Body found in burned out car near Bird Island identified as local farmer

The deceased is a 59-year-old man from rural Bird Island.

Screen Shot 2022-12-06 at 2.47.44 PM

Minneapolis' Khâluna named in Eater's 2022 'Best New Restaurants'

The restaurant, opened in 2021, is known for its Laotian cuisine.

ambulance, crash

3 pedestrians struck by drivers Monday in Minnesota; 2 dead

The victims involved a 39-year-old man and two 74-year-old men.

snow, plow

Shifting storm tracks: Significant storms Friday, next week?

Sven Sundgaard has the details on an interesting forecast.

Life Link

Worker suffers serious injury in rooftop fall in rural Minnesota

The man only fell a few feet, but suffered a serious leg injury.

Walz, Flanagan

Minnesota reports massive projected budget surplus of $17.6 billion

The huge surplus comes as the DFL prepares to assume a trifecta of the Legislature and the Governor's House.

tap-gf9a40b157_1280

Boil water advisory issued for part of Minneapolis after water main break

The main break caused significant flooding in an area of North Minneapolis Monday evening.

PicketSignsNurseStrike

Deals struck between nursing union and hospitals, potentially averting strike

A strike was scheduled to start on Dec. 11 if a deal was not reached.

Minnesota Solar Installation - All Energy Solar

Make the Most of your Solar Panels with Energy Storage

Solar energy is great during the day, but what happens when the sun goes down?

Related

Minnesota to add 2 new qualifying conditions for medical marijuana

Eight new dispensaries will open across the state as well.

Marijuana, cannabis

Minnesota adds 2 more qualifying conditions for medical marijuana

There will be 17 conditions that qualify people to obtain medical marijuana in Minnesota.

Minnesota study finds marijuana helps patients during cancer treatment

A study examined the experience of more than 1,000 patients.