Skip to main content
Publish date:

Girl whose rare illness helped pass medical marijuana law in Minnesota has died

The 12-year-old leaves behind an enduring legacy.
Author:

Amelia Weaver, the Hibbing girl whose plight helped bring about the legalization of medical marijuana in Minnesota, has died at the age of 12.

Weaver suffered from a rare form of epilepsy, which led her parents to play a major role in the ultimately successful campaign to pass medical marijuana laws, which became legal in Minnesota in 2015.

On her Facebook page, Fighting for Amelia, parents Josh and Angie Weaver announced their daughter's death on Thursday.

"Warrior Amelia after a lifelong battle with Scn2a passed away today," they wrote.

"We did not take one single moment with our Amelia for granted. It was the greatest privilege of our life’s to be Amelia’s parents. There are no seizures in Heaven sweet girl."

Weaver suffered from a rare and severe form of epilepsy called Dravet Syndrome, which cost her ability to speak and walk, and was eventually diagnosed at the age of 6.

Prior to taking medical marijuana, her condition would cause her to have 30-50 seizures every day.

But taking marijuana procured from one of Minnesota's medical pot providers, Leafline Labs, improved her condition considerably.

Follow Bring Me The News on Facebook.

Her seizures immediately reduced to only one every few days, she was able to take some steps with the help of her father, and she could finally travel with her family.

Her condition worsened this summer however, with her parents posting an update from the Mayo Clinic on Aug. 8 after the 12-year-old was airlifted there.

She was in the pediatric intensive care unit, with her parents noting her "battle with Scn2a has been an extremely tough lifelong fight."

Details of her funeral will be released in the coming days.

Next Up

940 Margaret St, St Paul, MN 55106, United States - May 2019 (1)

4-year-old girl struck by hit-and-run driver in St. Paul

The girl was struck by the driver around 5 p.m. Monday.

Minneapolis police

Baby found safe inside car that was stolen in south Minneapolis

The incident happened near 32nd Street and Chicago Avenue around 7 p.m.

Anthony Edwards

Ant puts on a show to help Timberwolves beat Pacers

A third-quarter surge gave the Timberwolves their seventh win in their past eight games.

Mikko Koivu

Wild to retire Mikko Koivu's No. 9 jersey

Koivu will be the first player in franchise history to have his number retired.

Boebert-Omar - Flickr Gage Skidmore

Rep. Boebert refuses to apologize for Islamophobic comment toward Rep. Omar

A phone call Monday between the two lawmakers ended abruptly.

Patrick Peterson

Vikings place Patrick Peterson on COVID-19/reserve list

The Vikings cornerback said he was vaccinated in August.

flickr - thin ice warning - USFWS Midwest

'Numerous' reports of eager anglers falling through ice

Conditions are still unpredictable, and can vary even across a single body of water.

covid

Minnesota health officials watching closely for omicron variant

Health leaders do not yet know how transmissible or severe the new variant is.

school bus stop pixabay

School bus driver charged in fatal hit-and-run will plead guilty

Another motorist told the driver to call 911, but he instead got on the bus and drove off, charges say.

Franconia Sculpture Park - Lorie Shaull - Flickr

5 outdoor destinations to explore around the Twin Cities

There's something for everyone on this list of overlooked spots.

Child mental health counseling

As pandemic continues, so do efforts to improve child mental health access

Children's Minnesota has announced it will open its first inpatient mental health facility for under 18s.

Dalvin Cook

Mixed reports on Dalvin Cook's injury status

The Vikings running back could miss two games...or he could play Sunday.

Related

Minnesota to add 2 new qualifying conditions for medical marijuana

Eight new dispensaries will open across the state as well.

Marijuana, cannabis

Minnesota adds 2 more qualifying conditions for medical marijuana

There will be 17 conditions that qualify people to obtain medical marijuana in Minnesota.

Minnesota study finds marijuana helps patients during cancer treatment

A study examined the experience of more than 1,000 patients.