Girl whose rare illness helped pass medical marijuana law in Minnesota has died

The 12-year-old leaves behind an enduring legacy.
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Amelia Weaver, the Hibbing girl whose plight helped bring about the legalization of medical marijuana in Minnesota, has died at the age of 12.

Weaver suffered from a rare form of epilepsy, which led her parents to play a major role in the ultimately successful campaign to pass medical marijuana laws, which became legal in Minnesota in 2015.

On her Facebook page, Fighting for Amelia, parents Josh and Angie Weaver announced their daughter's death on Thursday.

"Warrior Amelia after a lifelong battle with Scn2a passed away today," they wrote.

"We did not take one single moment with our Amelia for granted. It was the greatest privilege of our life’s to be Amelia’s parents. There are no seizures in Heaven sweet girl."

Weaver suffered from a rare and severe form of epilepsy called Dravet Syndrome, which cost her ability to speak and walk, and was eventually diagnosed at the age of 6.

Prior to taking medical marijuana, her condition would cause her to have 30-50 seizures every day.

But taking marijuana procured from one of Minnesota's medical pot providers, Leafline Labs, improved her condition considerably.

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Her seizures immediately reduced to only one every few days, she was able to take some steps with the help of her father, and she could finally travel with her family.

Her condition worsened this summer however, with her parents posting an update from the Mayo Clinic on Aug. 8 after the 12-year-old was airlifted there.

She was in the pediatric intensive care unit, with her parents noting her "battle with Scn2a has been an extremely tough lifelong fight."

Details of her funeral will be released in the coming days.

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