Skip to main content

The Ice Bucket Challenge helped fund a breakthrough in ALS research

  • Author:
  • Updated:

It looks like dumping ice water on your head has paid off.

A study funded by the ALS Association through donations from the ALS Ice Bucket Challenge has identified a new gene that will give scientists another potential target for therapy development, a news release says.

The gene – NEK1 – ranks among the most common genes that contribute to the disease.

The study, which was published Tuesday in "Nature," was the largest-ever study of inherited ALS, and was done by Project MinE, which included doctors at the University of Massachusetts Medical Center and the University Medical Center Utrecht.

"The ALS Ice Bucket Challenge enabled The ALS Association to invest in Project MinE’s work ...," Lucie Bruijn, Ph.D., M.B.A., said in the release.

For more on the research and how it could help ALS, click here.

The Ice Bucket Challenge

The ALS Ice Bucket Challenge started in 2014 to raise awareness about the progressive neurodegenerative disease, commonly known as Lou Gehrig's Disease.

It quickly became a viral sensation as people filmed themselves dumping buckets of ice water over their heads, and challenging others to do the same.

The campaign challenge raised more than $100 million for the ALS Association that year.

The hope is that every August people will participate in the challenge to continue to raise awareness and money towards finding a cure.

Next Up

Screen Shot 2022-05-21 at 5.46.37 PM

Video shows officers ended pursuit before fatal crash in Anoka

The crash occurred when the driver fled police during an attempted traffic stop in Coon Rapids.

Eli Hart

6-year-old Eli Hart identified as boy found dead in car trunk

The kindergartner's father was trying to get full custody of his son.


Boy found dead in trunk of car in Mound was kindergartner

"It is horrifying and difficult to process a tragedy of this magnitude, especially in our close-knit community," the superintendent wrote.

Minneapolis police

Man found yelling for help after being shot in Minneapolis

The shooting occurred on the 800 block of Elwood Avenue North at around 9:15 p.m.

Screen Shot 2022-05-21 at 9.56.21 AM

Minneapolis North principal says she was fired, district says otherwise

“MPS requires schools to follow protocols in times like that and I did not,” Friestleben said.

Kris Richard Severin

Inmate who escaped Minnesota prison is captured

The inmate escaped Wednesday morning.

Brave New Comedy Workshop in downtown Minneapolis.

Brave New Workshop cancels shows due to COVID-19 cases

The shows were scheduled for Friday and Saturday at the Brave New Workshop Comedy Theatre.

Austin Retterath

Body of missing U of M student found in Mississippi River

Austin Retterath was last seen alive in the morning hours of May 8.

"Love" mural seen in St. Paul.

Summer mural events to bring together community, shine light on MN artists

The 2022 Chroma Zone Mural & Art Festival will take place this weekend in St. Paul's Creative Enterprise Zone, with ensuing events happening this summer.


Gallery: Remodeled lakeside home in Prior Lake on market for $2.8M

It offers privacy at the end of a dead-end road fronting onto Lower Prior Lake.

golden valley police department

Carjacking outside ice arena in Golden Valley under investigation

Golden Valley PD confirmed it received a report of a carjacking Monday evening.